List of active policies

Name Type User consent
Knowing Parkinson's Site Policy Site policy All users
Parkinson's UK Privacy Policy Privacy policy All users

Summary

This site policy covers how we process your personal data and how you can request changes (minor update regarding deletion of profiles after 2 years of inactivity, 24 July 2023)

Full policy

1. What information is used

We collect, process and store the following Personal Data (but not Sensitive Personal Data) from adults in the health and care sector via webforms on our Parkinson’s UK website which contain a consent statement:

  • Name (first name and surname)
  • Email address (hidden from all students of the Moodle site, and only viewable by the system administrators and the site’s hosters)
  • Job title (hidden from all students of the Moodle site, and only viewable by the system administrators and the site’s hosters)
  • Location (hidden from all students of the Moodle site, and only viewable by the system administrators and the site's hosters).

In addition, when registering on this Knowing Parkinson's site, we ask you to create a password-protected account by completing a form that collects, processes and stores your first name, surname, username, email, and password. Your password is never viewable by the system administrators or site's hosters.

2. Purpose of processing of your data

We process your data on this Moodle site for the following reason: To validate your email address to enable the creation of a Moodle user profile and to enable you to study our online courses. When setting your password, we require a number of conditions to be met, including a combination of upper and lower case letters, numbers, symbols and a minimum length. Please note: login sharing is strictly prohibited on our site. Please keep your login details private and for your use only.

 

3. Data controller and contact information

The Data Controller is Parkinson’s UK, and the Data Protection Officer can be contacted by email at dataprotection@parkinsons.org.uk

 

4. Your rights

Information about your rights concerning our use of your personal data can be viewed at any time in the Parkinson’s UK Privacy Policy at https://www.parkinsons.org.uk/about-us/privacy-policy 

 

5. Period data is stored for

Unless we explain otherwise to you, we'll hold your personal information based on the following criteria:

  • for as long as we have reasonable business needs, such as managing our relationship with you and managing our operations
  • for as long as we provide services to you
  • retention periods in line with legal and regulatory requirements or guidance.

In addition, our policy on this Moodle site is to delete user profiles after 2 years of inactivity. When user profiles on the site are reaching capacity, we reserve the right to remove user profiles after 12 months of inactivity. Users can create new profiles if they wish to access more learning in the future.

 

6. Mechanism for withdrawing consent

If you wish to withdraw consent to our using your personal data on this Moodle site, please email kpmoodleadmin@parkinsons.org.uk. Our Moodle site administrator(s) will then deal with your request.

 

7. Mechanism for requesting corrections or erasure


  • If you wish to have your personal data on this Moodle site corrected please email kpmoodleadmin@parkinsons.org.uk. Our Moodle site administrator(s) will then make the required changes.
  • If you wish to have your personal data erased on this Moodle site please email kpmoodleadmin@parkinsons.org.uk. Our Moodle site administrator(s) will then edit your user profile to remove identifying information and make your profile inactive.

 

8. Mechanism for requesting a record of all personal data

If you wish to request a copy of your personal data on this Moodle site please email kpmoodleadmin@parkinsons.org.uk. Our Moodle site administrator(s) will then send you a CSV file containing your log records. In addition, we will contact the Moodle site’s hosters, Hubken Group Ltd, and request they send you a copy of your web server access records.

 

9. List of third parties your data is shared with, including their privacy policy and data protection officer’s contact details

Hubken Group Ltd, the company which hosts our Knowing Parkinson’s Moodle site. They are authorised by Parkinson’s UK to process the personal data of our Moodle site’s users for the purposes of maintaining the site and supporting the site’s administrators. Hubken Group Ltd’s Privacy Notice is available at https://tob.hubkengroup.com/ and includes contact details of their data privacy manager.


10. Automated decision making, and details of process

The only automated decisions made by the Moodle software of our Knowing Parkinson’s site involves the awarding of a digital badge on successful completion of some of our online courses. Successful completion involves achieving the stated pass mark in the quiz/quizzes of those courses. The quizzes are automatically marked by the Moodle software, based on criteria manually entered by the site administrator.


Summary

This Knowing Parkinson's site adheres to the conditions set out in the Parkinson's UK Privacy Policy

Full policy

Please see the full Parkinson's UK Privacy Policy at the following URL: https://www.parkinsons.org.uk/about-us/privacy-policy